Amara Nwosu

MBCHB FRCP PhD

Tag Archives: palliative care end of life care Marie curie cancer care


by Leave a comment

How can technology be used to support communication in palliative care beyond the COVID19 pandemic?

Can we use technology better to support communication in palliative care?

  • We are looking for palliative care healthcare professionals to share their experience of using technology to communicate during the COVID19 pandemic.
  • The study is funded by Marie Curie is led by Sarah Stanley (research nurse at Marie Curie Liverpool Hospice). The study has ethical approval and is sponsored by Lancaster University.
  • We are seeking the opinions of Palliative Care healthcare professionals who have worked in the UK during the COVID19 pandemic. 
  • This a short electronic survey (takes roughly 10 -15 minutes to complete) can be completed from a smartphone, laptop or desktop computer.
  • We will identify how technology have been used in palliative care, been used to support communication during the COVID19 pandemic. 
  • We will use the outcomes of this work to inform policy, to identify how technologies can be used to improve palliative access beyond the COVID19 pandemic.

  All the participant information, consent form and survey can be assessed from the link below.

Click here to access the survey

health technology design, vector illustration eps10 graphic
Advertisement


by Leave a comment

Implantable cardioverter defibrillator (ICD) deactivation in palliative care – a case involving best interest decisions for someone lacking capacity at the end of life

The use of implantable cardioverter-defibrillators (ICD) has increased due to benefits of preventing death from cardiac arrhythmia. However, the increasing use of ICDs has created new challenges for how to proactively manage deactivation of these devices in people who are dying, especially for those who lack capacity to make decisions about their care. The aim of this case report is to discuss the challenges of planning for deactivation of an ICD for a patient who lacked capacity at the end of life.


In this case report (published on AMRC Open Research) we describe the challenges of managing ICD deactivation in a dying patient with fluctuating capacity who had previously expressed a wish for the ICD to remain active. Although it is preferable to use advance care planning (ACP), to provide care in-line with patient-identified care preferences, we demonstrate how a best interest process can be used to make decisions about ICD deactivation at the end of life.

More information can be found in our case report here:

https://amrcopenresearch.org/articles/3-4


by Leave a comment

Marie Curie cancer Care calls for innovation in approach to how end of life care is delivered

Source: Marie Curie Cancer Care

Marie Curie Cancer Care wants ‘a change in thinking’ about end of life care because the provision of good-quality end of life care varies greatly across the UK and not everybody is getting the level of care and support they need.

A poll, conducted by ComRes for Marie Curie, highlights public confusion and concern about end of life care services, and the different experiences people have.

The Marie Curie have also developed innovative new evidence and data tools to help all service providers, commissioners and policy maker identify gaps in end of life care in their area. This includes a study from the Nuffield trust about the benefits of Marie Curie nurses in the community, and a web based tool to view the state of palliative care in areas across the UK.