I was delighted that our letter about Big Data and palliative medicine was published in ‘Palliative Medicine’. This was in response to an editorial by Peter Tanuesputro which described how Big Data analysis of linked data has the potential to support care by indentifying patient needs. Our letter describes five challenges which need to be considered in order to make meaningful use of Big Data analysis in palliative care.
The letter is freely available in full from the link below.
This episode of AmiPal is about the development of this podcast. I’ll discuss my paper which was recently published in BMJ Supportive and Palliative Care:
Lin M, Thoma B, Trueger NS et al. Quality indicators for blogs and podcasts used in medical education: modified Delphi consensus recommendations by an international cohort of health professions educators. Postgraduate Medical Journal 2015;91(1080):546-50. pmj.bmj.com/content/91/1080/546.long
In this episode of AmiPal I talk with Dr Hannah Sammut (Renal Physician and Royal College of Physicians post-CCT fellow in Palliative Medicine) about the importance of palliative medicine and palliative care.
The prevalence of symptoms in end-stage renal disease: a systematic review. Murtagh FE et al. Adv Chronic Kidney Dis. 2007 Jan;14(1):82-99. www.ncbi.nlm.nih.gov/pubmed/17200048
Is maximum conservative management an equivalent treatment option to dialysis for elderly patients with significant comorbid disease?Carson RC et al.Clin J Am Soc Nephrol. 2009 Oct;4(10):1611-9. doi: 10.2215/CJN.00510109 www.ncbi.nlm.nih.gov/pubmed/19808244
AmiPal and it’s content is copyright of Dr Amara Nwosu, KingAmi Media 2016. www.amaranwosu.com
I interview Dr Daniel Monnery (Speciality trainee registrar in Palliative Medicine in the Mersey Deanery) to discuss a variety of topics including: postgraduate training in palliative medicine, medical handover, undergraduate medical education and its relevance to palliative care.
Dr Amara Nwosu discusses his paper about peer-led learning as a mechanism to facilitate palliative care education in medical undergraduates.
Nwosu A, Mason S, Roberts A, Hugel H. Does peer-led education have a role in teaching medical students about palliative care? The evaluation of an examination question-writing task. The Clinical Teacher 2013;10(3):151-4 http://www.ncbi.nlm.nih.gov/pubmed/23656675
In this episode of MyPal Dr Amara Nwosu provides an overview publishing in palliative care, discussing the importance of this and sharing some tips for potential authors. The audio was recorded to support an educational session as part of the Merseyside & Cheshire Palliative Care Network Audit Group.
Mahiben Maruthappu, Bruce Keogh. How might 3D printing affect clinical practice?
BMJ 2014; 349 doi: dx.doi.org/10.1136/bmj.g7709 (Published 30 December 2014)
Nanotechnology to diagnose and monitor cancer? Nanopills and smartwatches in disease management and treatment? Sounds like science fiction but that is what researchers at Google are working on right now! Dr Ami Nwosu discusses this in more depth.
Google have entered into the health research arena. They aim to use technology to diagnose cancer early. I believe is exciting and should cause us to question how technology could be used in palliative care.
Computer science has arguably overtaken medicine as the newest academic discipline. Modern applications like the iPhone (only developed in 2007) have irreversibly changed the way we interact with technology on a daily basis. However, it is not common to hear about medics collaborating with computer scientists or undertaking computer science courses or research. This is in contrast with other academic disciplines such as natural sciences, social sciences and psychology.
The ‘Google X’ project aims to avoid unnecessary deaths. In terms of cancer Google propose a diagnostic ‘smart pill’ that can be swallowed by an individual which. The pull would contain magnetised nanoparticles that would be released into the blood when swallowed. These particles would travel round the body looking for biomarkers, only to return (by action of their magnets) to a wearable device on the wrist to download the results. In addition to cancer Google indicate that other markers (such as sodium) could be monitored.
Google’s aim to reduce unnecessary deaths is admirable; however, should we also be asking how we can use computer science and concepts like nanotechnology to improve palliative care? Or, conversely, should high tech, high cost interventions be avoided at the end of life? This is interesting food for thought. What is certain is that technology and innovation will continue and the role this has in palliative care needs to be considered.
We are living in a digital age and the speed of advancement of technology is, at times, staggering. One technological phenomenon which continues to grow is social media. For example, Twitter (a social media micro-blogging service) has, since its creation in 2006, amassed 271 million monthly active users (who send approximately 500 million tweets per day).
Social media platforms enable their users to connect with others to facilitate discussion on topics of shared interest. This is notable with palliative care professionals who, over time, have established an increasing online presence.
Social media can be used to engage a specific audience, in order to obtain feedback and to communicate information to users. Social media analytical tools can be used to analyse tweets, in order to capture data, predict behaviour of users, analyse sentiment, identify influential people and create targeted advertising campaigns.
Although popular with many businesses, this technology is less commonly used by healthcare and academic organisations. Consequently, there is the potential to use these applications to gain a greater understanding about the use of social media in palliative care.
The aim of our study was to determine the frequency, sentiment and trend of Twitter ‘tweets’ containing palliative care related hashtags (for example, #palliative) and/or phrases sent by users over a two-year period. TopsyPro, a social media analytics tool, was used to conduct the analysis. TopsyPro provides several metrics about tweets, such as the volume, frequency, the overall tone (sentiment) and change in use over time (acceleration). In total, 13 palliative search terms were identified and analysed.
Our analysis revealed that over a two year period (2011 – 2013) the discussion of palliative care on Twitter was frequent (683,500 tweets) and increasing (a rise of 62.3% over the two years). We found that the majority of tweets were positive about the palliative care, demonstrated by a sentiment score of 89% (meaning that 89% of tweets were more positive than all other tweets sent on Twitter during this period). The analysis also demonstrated an increase of activity of several search terms in July 2013, which coincided with the release of the final report of the Independent review of the Liverpool Care of the Dying Pathway in that summer.
Overall this study demonstrates that a lot of discussion about palliative care is taking place on Twitter, and the majority of this is positive. Consequently, social media presents a novel opportunity for engagement and ongoing dialogue with public and professional groups about palliative care.
References
Nwosu AC, Debattista M, Rooney C, Mason S. Social media and palliative medicine: a retrospective two-year analysis of global Twitter data to evaluate the use of technology to communicate about issues at the end-of-life. BMJ Support Palliat Care 2014; Sep 2. pii: bmjspcare-2014-000701. doi: 10.1136/bmjspcare-2014-000701. [Epub ahead of print] http://spcare.bmj.com/content/early/2014/09/02/bmjspcare-2014-000701