Amara Nwosu

MBCHB FRCP PhD CF SFHEA


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Social media and palliative medicine: a retrospective 2-year analysis of global twitter data to evaluate the use of technology to communicate about issues at the end of life

ARTICLE FROM E-HOSPICE UK

http://www.ehospice.com/uk/ArticleView/tabid/10697/ArticleId/12212/language/en-GB/View.aspx

We are living in a digital age and the speed of advancement of technology is, at times, staggering. One technological phenomenon which continues to grow is social media. For example, Twitter (a social media micro-blogging service) has, since its creation in 2006, amassed 271 million monthly active users (who send approximately 500 million tweets per day).

Social media platforms enable their users to connect with others to facilitate discussion on topics of shared interest. This is notable with palliative care professionals who, over time, have established an increasing online presence.

Social media can be used to engage a specific audience, in order to obtain feedback and to communicate information to users. Social media analytical tools can be used to analyse tweets, in order to capture data, predict behaviour of users, analyse sentiment, identify influential people and create targeted advertising campaigns.

Although popular with many businesses, this technology is less commonly used by healthcare and academic organisations. Consequently, there is the potential to use these applications to gain a greater understanding about the use of social media in palliative care.

The aim of our study was to determine the frequency, sentiment and trend of Twitter ‘tweets’ containing palliative care related hashtags (for example, #palliative) and/or phrases sent by users over a two-year period. TopsyPro, a social media analytics tool, was used to conduct the analysis. TopsyPro provides several metrics about tweets, such as the volume, frequency, the overall tone (sentiment) and change in use over time (acceleration). In total, 13 palliative search terms were identified and analysed.

Our analysis revealed that over a two year period (2011 – 2013) the discussion of palliative care on Twitter was frequent (683,500 tweets) and increasing (a rise of 62.3% over the two years). We found that the majority of tweets were positive about the palliative care, demonstrated by a sentiment score of 89% (meaning that 89% of tweets were more positive than all other tweets sent on Twitter during this period). The analysis also demonstrated an increase of activity of several search terms in July 2013, which coincided with the release of the final report of the Independent review of the Liverpool Care of the Dying Pathway in that summer.

Overall this study demonstrates that a lot of discussion about palliative care is taking place on Twitter, and the majority of this is positive. Consequently, social media presents a novel opportunity for engagement and ongoing dialogue with public and professional groups about palliative care.

References

Nwosu AC, Debattista M, Rooney C, Mason S. Social media and palliative medicine: a retrospective two-year analysis of global Twitter data to evaluate the use of technology to communicate about issues at the end-of-life. BMJ Support Palliat Care 2014; Sep 2. pii: bmjspcare-2014-000701. doi: 10.1136/bmjspcare-2014-000701. [Epub ahead of print] http://spcare.bmj.com/content/early/2014/09/02/bmjspcare-2014-000701


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Slow down!

Christmas day: Up early; Christmas presents opened; nappies changed; chicken pox still problematic; hospice visited – nurses appreciative; Christmas day church service – very nice; one turkey (and another turkey); Queen’s speech; tired 3 year old; curious 6 month old; tired 30-something’s.

Boxing day: The beach; The M6; gammon; motorised trains; pink champagne; the Bible TV series; exhaustion.

Today: Picture hanging; birthday party planning; watch fixing; shopping; cleaning; bathing; Charlie Brooker; whiskey.


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Earlier GMC registration for junior doctors – shape of training report

shape of training logo

The independent review of postgraduate training (the shape of training review) for doctors in the UK was completed in the past 2 months and suggested a host of recommendations. This includes a greater emphasis on creating ‘generalists’ through a broad based training program, with few of these progressing on to be specialists. On paper, the proposals look at the reverse of modernising medical careers, which came in less than a decade earlier. The proposed change to award a CST (certificate of specialty training) as opposed to CCT (certificate of completion of specialist training), has led to fears that this may result in a sub-consultant grade that those with CST have to progress through before they can reach consultant appointments.

An item buried in the report is the move of full GMC registration to the end of medical school. Currently this sits after the foundation 1 (FY1) year. On paper, this change may seem innocuous; however, it potentially may lead to several issues. Firstly, it will put greater pressure on medical schools to ensure their graduates are fit to practice independently. Second, it will increase competition for FY1 posts from other countries, as now doctors who were previously ineligible from applying for FY1 posts (currently reserved for doctors with provisional registrations) will be eligible to apply; a move which may cause UK graduates (who already face over-subscription for foundation posts) to be unemployed. Thirdly, it also makes it easier for UK doctors to leave the UK immediately after medical school. Finally, it may cause legal ramifications for graduate entry medical schools who current provide 4 year courses (but under EU law are required to provide a five year course, with the FY1 being used as proxy for the final year, leading to full GMC registration). A move to earlier registration may mean that these medical schools may need to consider adding an extra year to the training (thus negating benefit of the  graduate entry course) or even consider closure.

As with anything, the devil will be in the detail. In the meantime, the British Medical Association (BMA) are monitoring the situation carefully through their representative committees.

Further information can be found here:

Shape of training

BMA response to shape of training 

#shapeoftraining


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Getting ready for Christmas; planning rest into a PhD…

This has been a crazy few days. London on Friday for a BMA academic committee meeting, followed  by a family packed weekend. In summary, two 6-foot Christmas trees have been hauled into the back of a small Renault Clio and put up in two different houses. Thirty or so Christmas cards written; various parcels posted; a church Christmas party has been enjoyed with friends, followed by a Christingle locally on our estate – very nice.

Something the PhD is teaching me about the importance of time management. The decision to allow time for rest and recuperation is essential to ensure that you have to complete your studies. Academia, medicine and work in general have insatiable appetites; if you don’t allow time between courses you’ll end up with bellyache.


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Shooting star

This weekend I was in a Huddersfield with family. We had decided to conduct fireworks this weekend as I was attending the BMA academic trainees conference the weekend before. My four month old child had taken an uncharacteristically long time to settle in the evening and was waking up several times, hourly, that night. At 3am I elected to take him downstairs to see whether he would settle there, and to also provide my wife with some much needed rest.

On navigating downstairs I made my way to the conservatory, which hosted a long sofa that I could lie down on. The conservatory provides excellent views of the Yorkshire dales which, despite the neighbouring M62 motorway, offer low levels of light pollution of the night sky. Consequently, I was rewarded with a wonderful panorama of the night sky, which the belt of Orion, Venus, Sirus all easily visible with the naked eye. Almost immediately I saw a beautiful shooting star; the first time I’d seen such a sight. I’ve grown up in cities where it is often difficult to see any stars at night – this was a real blessing. Theo promptly fell asleep in my arms, almost as if he was satisfied with the event. I sat on the couch for a few minutes to ponder what just happened, after which I took him back upstairs where he slept soundly until the morning.

The night sky is really beautiful. I’m convinced Theo wanted to see it and show me the shooting star. It was really lovely; I thank God and Theo for such a nice moment.


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Social Care Funding Changes: made simple to understand

Source: money.co.uk

In July 2011, economist Andrew Dilnot published his proposals on how to fund adult social care and make it both sustainable for the state and affordable for the elderly.

18 months later Health Secretary Jeremy Hunt has responded with the Government’s plans to revamp the care funding system in England.

We take a look at four changes to how social care for the elderly will be paid for – both privately and publicly – going forward:

1. £72,000 cap on how much individuals will pay

Around 10% of people currently end up paying over £100,000 in care costs as they grow old.

From April 2016, the amount you’ll have to pay for “standard-rate” care in England will be limited to £72,000 with the rest paid by the state. This was originally set to be capped at £75,000 and starting in 2017.

However, if your non-health costs exceed this standard-rate then you’ll likely need to make up the difference even after hitting the £72,000 cap.

Non-care costs such as food and accommodation aren’t included in the cap, and these ‘hotel’ costs can account for as much as £7,000 to £10,000 per year in today’s money, which you’ll need to pay on your own.

The Government’s cap almost doubles Dilnot’s preferred £35,000 figure, even after inflation is added; it means 16% of over-65s should face cheaper bills (compared to the 37% that would have been helped under Dilnot’s proposals).

2. How will you and I be able to pay for it?

It is hoped that setting a worst-case-scenario upper limit for how much you may need to pay will at the very least give you a target to plan for financially, against your future care needs.

The Government also hopes the cap will also encourage insurance companies and even pension providers to start providing for social care into their policies, although it has been disputed in some areas whether this will actually happen.

3. Means-testing threshold to rise from £23,250 to £123,000

Currently, elderly people who need to move into a residential care home are eligible for means-tested Government support if their total assets are worth £23,250 or less. £14,000 or less, and it’s free.

From April 2013, you will be able to claim some form of means-tested Government support for residential care up to a personal wealth threshold of £123,000. That figure is more or less in line with Dilnot’s proposals, taking into account inflation.

4. How will the Government fund its part?

The Government hopes to generate 80% of its expected £1bn annual spend on social care from extra National Insurance contributions which will start alongside the single-tier state pension in 2016.

The remaining 20% will be funded by freezing the existing Inheritance Tax threshold at £325,000 per person (£650,000 for couples) for an extra three years, until 2019.

5. What about Scotland, Wales & Northern Ireland?

Social care in Scotland

Currently, social (personal) care is available free to all pensioners living at home.

For elderly people living in residential care homes, the Scottish Government makes a flat rate contribution to your personal care or nursing costs, while ‘hotel’ or accommodation costs are means-tested.

However, at a current cost to the Scottish taxpayer of £500m per year there are concerns that Scotland too will face a social care funding gap as costs continue to grow.

Social care in Wales

There is currently a £50 per week cap on how much you’ll pay for care, provided you’re living at home and receiving non-residential services. However, there is no current cap on contributions toward residential care.

The Social Services and Well-being (Wales) Bill was introduced to the Welsh Assembly for consultation in January 2013; the effects of the changes made in England will be considered during its consultation prior to adopting or rejecting its measures.

Social care in Northern Ireland

Proposals for revamping social care in Northern Ireland were published in 2012, with consultation and review ongoing. Currently your personal assets are means-tested for Government support, similar to in England and Wales.

Read more: http://www.money.co.uk/article/1009567-social-care-changes-what-they-mean-for-you.htm#ixzz2Os863Xqj


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Hospices call on Government to close the VAT gap between the NHS and charities

Help the Hospices welcomes the publication of Monitor’s Fair Playing Field Review, which explores issues affecting the ability of charities to deliver NHS services.

For over 40 years, local charitable hospices have provided the vast majority of hospice care within the UK, caring for over 360,000 patients and family members each year. They provide over 80% of the specialist palliative care inpatient beds within the health care system and are major providers of home based care, yet they are frequently disadvantaged compared to other types of healthcare organisations.

The Health and Social Care Act 2012 placed a requirement on the Secretary of State to report back to Parliament on the way in which the health care system operates for different types of organisations.  This requirement was influenced by a campaign led by Sue Ryder and Help the Hospices to encourage the Government to address the additional VAT costs that hospices face. Under current tax rules the NHS is able to recover VAT on certain non-business supplies that charitable hospices cannot. Hospices often cover this ‘VAT gap’ with charitable donations, diverting resources away from vital services.

Jonathan Ellis, director of policy and parliamentary affairs at Help the Hospices, said:

“With an ageing population and growing demand for end of life care, there is an urgent need to level the playing field for local hospices to support and develop their role as leaders, educators and major funders of end of life care within the communities that they serve.

Most of the funding to provide hospice care comes from local people, not from the Government.  Addressing the VAT burden on charitable hospices would help them in a difficult economic climate to use charitable funds to do what they do best – provide more care to more patients, families and carers in the local community.

Hospices are unique among providers of health and social care because they contribute so significantly to the funding and provision of end of life care – raising more than £30 for every £10 of government funding. As the report acknowledges, there is a need for stronger partnership working, using the expertise of both the third sector and the NHS to renew focus on providing services for the benefit of the patient. It is now up to commissioners and care professionals to work in partnership to turn this into reality.

We welcome the approach that Monitor has taken in conducting this review, listening to the voice of local hospices and we now encourage the Government to take early steps to deliver greater fairness for charities like hospices.”


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Medical registrars’ increasing workload threatens training quality and patient care

Source: BMJ Careers

Authors: Caroline White 

Publication date:  05 Mar 2013


Medical registrars are struggling to cope with “unmanageable” workloads, jeopardising the safety of patients and the quality of hospital care and compromising training, the Royal College of Physicians has warned.[1]

Hospitals cannot afford to let the situation deteriorate any further, concludes a report from the college on the future of the hospital workforce. The report draws on evidence gathered in 2011-12 from online surveys and face to face interviews with 2800 medical registrars (doctors in the later stages of training to become consultants and who specialise in hospital medicine rather than general practice or surgery) in England.

Hospitals are too reliant on medical registrars to provide the bulk of hospital services, particularly at night, the report says. More than one in three (37%) trainee doctors described the medical registrar workload as “unmanageable,” and more than half (59%) said it was “heavy.” Just one in 20 GP registrars thought this way about their workload.

This situation threatens patient safety and heightens the risk that the most able junior doctors will be put off pursuing a career in acute hospital medicine, the college suggests.

Its report calls on hospitals to review the workload of medical registrars and their associated teams as a matter of urgency. Hospitals should adjust rotas and redistribute basic clinical and administrative tasks to other staff, it says. Additional resources should be provided when the workload puts patient safety at risk, it adds.

Hospitals also need to change as a result of the increasing number of female trainee doctors in the workforce, the report says. It recommends that local education and training boards promote flexible training posts for medical registrars to ensure that women don’t desert medical specialties.

The report also argues that the quality of training provided is too variable and that training is further compromised by registrars’ heavy workload. Only 38% of registrars thought that their training in general medicine was “good” or “excellent,” compared with 75% in their main specialty.

Medical registrars and other trainees should routinely attend post-take reviews of all patients they have dealt with, including ward referral patients, the report suggests. Hospitals should also ensure that medical registrars can maintain their practical skills, including specialty skills required of them.

The report calls on the Department of Health to reassess the value of the second year of foundation training for those wishing to specialise in hospital medicine and to explore the benefits of extending core medical training.

The uneven distribution of consultants around the country serves to compound problems in the medical registrar workforce, it says. Patients in London have almost double the number of consultants per head of the population as those in the East Midlands, it points out.

Andrew Goddard, director of the Medical Workforce Unit at the Royal College of Physicians, said that medical registrars were the “unsung heroes of hospital care.” He said, “Their skills are not being used to best meet patients’ needs. The NHS will soon struggle to provide the best care for patients if this situation is not urgently reviewed.”

The data on the availability of consultants across the country reflected poor workforce planning, he added. “National and local education and training structures must get to grips with this straight away,” he urged.

Ben Molyneux, chairman of the BMA’s Junior Doctors Committee, said that medical registrars’ excessive workload was bad for training and for patient care. He called for hospital services to be redesigned.

“If we don’t do this we risk the next generation of consultants avoiding careers in acute medical specialties,” he said. “All junior doctors should get decent training and be properly supported if we are to deliver the highest standards of care for our patients.”

References

  1. Royal College of Physicians. Hospital workforce: fit for the future? Mar 2013.www.rcplondon.ac.uk/projects/hospital-workforce-fit-future.

Caroline White freelance journalist, BMJ

cwhite@bmj.com