Amara Nwosu

MBCHB FRCP PhD CF SFHEA


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New paper: Palliative care healthcare professionals’ experiences of managing digital legacy as part of advance care planning for people receiving palliative care

I am delighted to be a co-author on a paper, published in the Palliative Medicine journal, which explores how we support people to manage their digital legacy after death.

In this paper Sarah Stanley , and collegaues, used a constructivist grounded theory approach, and semi-structured interviews, to understand healthcare professionals’ (working in a hospice) experiences of managing digital legacy.

The results demonstrated the following:

  • Palliative care healthcare professionals believe that managing digital belongings is as important as managing physical belongings.
  • Palliative care healthcare professionals require education to improve their knowledge and understanding of digital legacy.
  • Digital legacy should become part of advance care planning conversations.

The paper is freely available (open access) from the link below and is Editor’s choice article of Palliative Medicine for October 2023.

Stanley S, Higginbotham K, Finucane A, Nwosu AC. A grounded theory study exploring palliative care healthcare professionals’ experiences of managing digital legacy as part of advance care planning for people receiving palliative care. Palliative Medicine. 2023;0(0). doi:10.1177/02692163231194198